Patient and Family-Centred Care toolkit

The Patient and Family-Centred Care (PFCC) toolkit is a simple, step-by-step method for understanding what a care experience is like, what needs to change, and which small improvements can make a big difference to patients, families and staff alike. It is a guide to improving processes of care and staff–patient interactions, using a technique called Patient and Family-Centred Care (PFCC). It offers a simple way for health care organisations to show their commitment to patients’ experience of the care they receive while also attending to the wellbeing of the staff who deliver that care.

The toolkit evolved from the Patient and Family-Centred Care programme, an initiative that was run jointly by the Health Foundation and The King’s Fund to develop a small number of exemplary hospitals and a team of professional staff and managers who could demonstrate their achievements to others and bring sustainable improvement in patients' experience ...

Patient and Family-Centred Care toolkit

The Patient and Family-Centred Care (PFCC) toolkit is a simple, step-by-step method for understanding what a care experience is like, what needs to change, and which small improvements can make a big difference to patients, families and staff alike. It is a guide to improving processes of care and staff–patient interactions, using a technique called Patient and Family-Centred Care (PFCC). It offers a simple way for health care organisations to show their commitment to patients’ experience of the care they receive while also attending to the wellbeing of the staff who deliver that care.

The toolkit evolved from the Patient and Family-Centred Care programme, an initiative that was run jointly by the Health Foundation and The King’s Fund to develop a small number of exemplary hospitals and a team of professional staff and managers who could demonstrate their achievements to others and bring sustainable improvement in patients' experience ...

Patient experience of primary care and advance care planning: a multicentre cross-sectional study in Japan.

Advance care planning (ACP) is a process whereby a patient, in consultation with health care providers, family members, and important others, makes decisions about his or her future health care. ACP process includes discussions regarding goals of care, resuscitation and life support, palliative care options, surrogate decision-making and advance directives (AD). Previous studies have shown positive impact of ACP on end-of-life care, including less aggressive medical care and better quality of life; decreased rates of hospital admission, especially of nursing home residents; and increased rates of hospice admission. So the aim of this study was to investigate the relationship between patient experience of primary care and ACP.

The evolution of family-centered care: From supporting parent-delivered interventions to a model of family integrated care

There is increasing recognition that parents play a critical role in promoting the health outcomes of low birthweight and preterm infants. Despite a large body of literature on interventions and models to support family engagement in infant care, parent involvement in the delivery of care for such infants is still restricted in many neonatal intensive care units (NICUs). This article proposes a taxonomy for classifying parent-focused NICU interventions and parent-partnered care models to aid researchers, clinical teams, and health systems to evaluate existing and future approaches to care. The proposed framework has three levels: interventions to support parents, parent-delivered interventions, and multidimensional models of NICU care that explicitly incorporate parents and partners in the care of their preterm or low birthweight infant. 

Comparison of family centered care with family integrated care and mobile technology (mFICare) on preterm infant and family outcomes: a multi-site quasi-experimental clinical trial protocol

Family Centered Care (FCC) has been widely adopted as the framework for caring for infants in the Neonatal Intensive Care Unit (NICU) but it is not uniformly defined or practiced, making it difficult to determine impact. Previous studies have shown that implementing the Family Integrated Care (FICare) intervention program for preterm infants in the NICU setting leads to significant improvements in infant and family outcomes. Further research is warranted to determine feasibility, acceptability and differential impact of FICare in the US context. The addition of a mobile application (app) may be effective in providing supplemental support for parent participation in the FICare program and provide detailed data on program component uptake and outcomes.

Building a Thriving Primary Health Care System: The story of Costa Rica

Situated in Central America, Costa Rica’s 4.9 million citizens have access to one of the most effective primary health care systems in the world. The country’s unique, team-based model of primary care service delivery successfully combines preventive and curative care to provide comprehensive primary health care to nearly all Costa Rican citizens. This case study examines the process by which Costa Rica developed its laudable primary health care system, fully describes the functioning of the system through both clinical and patient perspectives, and elucidates key lessons about primary health care delivery that can be learned from the Costa Rican experience.

The importance of power, context and agency in improving patient experience through a patient and family centred care approach

Research shows that the way that healthcare staff experience their job impacts on their individual performance, patient experience and outcomes as well as on the performance of organisations. This article builds on this literature by investigating, with multi-disciplinary clinical teams as well as patients and relatives, what factors help or hinder changes designed to improve patient experience.

Integrated Care Matters: Webinar Series 7: Proactive, Personalised Digital Care and Support in collaboration with Scotland’s Digifest22

IFIC Scotland and partners are delighted to announce the first webinar in our Integrated Care Matters Series 7. This series will consider innovations in holistic and personalised approaches to integrated care and support.

Each webinar will be accompanied by a topic resource with links to further information. All who register will receive links to the recordings and topic resources.